May 21, 2014 § 5 Comments
It’s hard you know talking about the future when your child has a disability. It’s hard to even think about it. It’s complicated, painful and you have to muster up all your hope and faith. You have to trust the world and plan for good things to come but prepare for the bad things as well.
Developing an IEP during a transition year brings a lot up of emotion. It’s amazing how I can only deal with it on a moment to moment basis. It’s too much to think about or talk about in one conversation – it’s too big – how do you project the future and prepare for what may or may not be in advance? Today on my way to an appointment to discuss such things I came across an unfortunate situation – I got stuck in traffic and I was alone. I was alone with my thoughts – my mind was already swirling with preparation questions I was asked to consider in advance – hopes, dreams, fears, concerns, etc. I had already written down my answers in advance – it’s easier for me to write – it’s less emotional I think because when I write I don’t have to say it all out loud and it seems less “real”. But, there I was trapped with myself -and my thoughts, then the flood gates opened – what the hell was wrong with me? Where was this coming from? Why was I crying? Crap now I’m crying writing about crying – maybe writing isn’t less emotional!
It’s because it’s all so hard – we don’t do this for our typical kids – we don’t plan every last detail – we wouldn’t. But for our kids with needs we must be fortune tellers, advocates and mothers all at once – some days that is too much.
Teachers – when you sit in IEP meetings and listen to a parents concerns and vision – respect it! It is a heavy task to produce a vision for the future for another person – especially when none of us really know what tomorrow may bring.